Comments on: Hep C Treatment http://www.susanpiver.com/wordpress/2008/03/19/hep-c-treatment/ Susan Piver - Meditation, Relationships, Creativity Tue, 07 Feb 2012 03:23:40 -0500 http://wordpress.org/?v=2.8 hourly 1 By: Susan http://www.susanpiver.com/wordpress/2008/03/19/hep-c-treatment/#comment-2992 Susan Sat, 02 Oct 2010 15:48:01 +0000 http://www.susanpiver.com/wordpress/2008/03/19/hep-c-treatment/#comment-2992 Hi Terry. The treatment is tough, and it sounds like for you it was particularly tough. I didn't lose my hair, but I had all the other symptoms you list, as well as hearing loss. NOT a fun time. I'm so so so sorry you didn't have a sustained response. Of course you would be super upset. The same thing happened to me--I sustained response for the majority of the treatment, but relapsed after 2 months. I decided to do the treatment for relapsers/non-responders--a synthetic form of interferon + ribavirin--and it worked. It's been two years and my liver functions are still normal. Hang in there!! Keep me posted if you would. Susan Hi Terry. The treatment is tough, and it sounds like for you it was particularly tough. I didn’t lose my hair, but I had all the other symptoms you list, as well as hearing loss. NOT a fun time. I’m so so so sorry you didn’t have a sustained response. Of course you would be super upset.

The same thing happened to me–I sustained response for the majority of the treatment, but relapsed after 2 months. I decided to do the treatment for relapsers/non-responders–a synthetic form of interferon + ribavirin–and it worked. It’s been two years and my liver functions are still normal. Hang in there!!

Keep me posted if you would.

Susan

]]> By: Terry http://www.susanpiver.com/wordpress/2008/03/19/hep-c-treatment/#comment-2958 Terry Sun, 29 Aug 2010 22:56:50 +0000 http://www.susanpiver.com/wordpress/2008/03/19/hep-c-treatment/#comment-2958 About 5 weeks ago I finished my treatment of Riba and interferon for my genotype1 Hep C. I really had a hard time of it. I lost probably 2/3 of my hair, weight loss, weakness, had horrible headaches, wierd rashes and had to incorporate two other injections into the treatment (one for my low white blood count, and the other for my low hemaglobin count). However, I was able to work for most of the 48 weeks with all other available time spent on the sofa. At week 24, I was undetectable. Anyway, I got a call from my doctor on Friday and they told me the virus is back. I'm SO bummed out. So many things are running through my mind....like did "I" do something wrong, doubting God, anger, crying. I'm just really, really down right now. In 2 weeks I will return to the Dr. and we will discuss my options. I'm scared. But I suppose I did learn one thing during this whole ordeal.....I'm stronger that I thought I was. If you have just started treatment, I don't mean to sound so negative. Two friends of mine who have undergone the same treatment are still undetectable a year out, are back to enjoying their lives and look like they feel great. Thanks for having a site where I could express some of my feelings/thoughts. Good luck to everyone out there. About 5 weeks ago I finished my treatment of Riba and interferon for my genotype1 Hep C. I really had a hard time of it. I lost probably 2/3 of my hair, weight loss, weakness, had horrible headaches, wierd rashes and had to incorporate two other injections into the treatment (one for my low white blood count, and the other for my low hemaglobin count). However, I was able to work for most of the 48 weeks with all other available time spent on the sofa. At week 24, I was undetectable.
Anyway, I got a call from my doctor on Friday and they told me the virus is back. I’m SO bummed out. So many things are running through my mind….like did “I” do something wrong, doubting God, anger, crying. I’m just really, really down right now.
In 2 weeks I will return to the Dr. and we will discuss my options.
I’m scared. But I suppose I did learn one thing during this whole ordeal…..I’m stronger that I thought I was.
If you have just started treatment, I don’t mean to sound so negative. Two friends of mine who have undergone the same treatment are still undetectable a year out, are back to enjoying their lives and look like they feel great.
Thanks for having a site where I could express some of my feelings/thoughts. Good luck to everyone out there.

]]> By: Susan http://www.susanpiver.com/wordpress/2008/03/19/hep-c-treatment/#comment-2647 Susan Thu, 20 May 2010 11:53:51 +0000 http://www.susanpiver.com/wordpress/2008/03/19/hep-c-treatment/#comment-2647 Lisa, how is it going?? I wish you all the strength you need to navigate this very difficult but also potentially healing treatment. Lisa, how is it going?? I wish you all the strength you need to navigate this very difficult but also potentially healing treatment.

]]> By: Lisa http://www.susanpiver.com/wordpress/2008/03/19/hep-c-treatment/#comment-2371 Lisa Wed, 28 Apr 2010 18:38:20 +0000 http://www.susanpiver.com/wordpress/2008/03/19/hep-c-treatment/#comment-2371 I start my medication for Hep c geno type 1 this Friday April 30 2010. I had breast cancer in 1996 and I went threw all the chemo and raditation. I think I can do this treatment God Willing just as I did in1996. I know it will most proably be harder because I was39 then and 53 now. I am ready to start and get this behind me. I stay tired and sleepy all the time ,so I am hoping maybe to sleep threw some of the hard stuff. GOD BLESS TO ALL. I start my medication for Hep c geno type 1 this Friday April 30 2010. I had breast cancer in 1996 and I went threw all the chemo and raditation. I think I can do this treatment God Willing just as I did in1996. I know it will most proably be harder because I was39 then and 53 now. I am ready to start and get this behind me. I stay tired and sleepy all the time ,so I am hoping maybe to sleep threw some of the hard stuff. GOD BLESS TO ALL.

]]> By: susan http://www.susanpiver.com/wordpress/2008/03/19/hep-c-treatment/#comment-1844 susan Wed, 10 Jun 2009 23:30:23 +0000 http://www.susanpiver.com/wordpress/2008/03/19/hep-c-treatment/#comment-1844 Brenda, I'm so sorry to hear about your daughter. I did as well as could be expected on treatment, and I hope she does too. How can I help? Brenda, I’m so sorry to hear about your daughter. I did as well as could be expected on treatment, and I hope she does too.

How can I help?

]]> By: Brenda Murphy http://www.susanpiver.com/wordpress/2008/03/19/hep-c-treatment/#comment-1840 Brenda Murphy Wed, 10 Jun 2009 10:16:10 +0000 http://www.susanpiver.com/wordpress/2008/03/19/hep-c-treatment/#comment-1840 PLEASE we just feel so alone out here in left field. PLEASE we just feel so alone out here in left field.

]]> By: Brenda Murphy http://www.susanpiver.com/wordpress/2008/03/19/hep-c-treatment/#comment-1838 Brenda Murphy Wed, 10 Jun 2009 10:04:12 +0000 http://www.susanpiver.com/wordpress/2008/03/19/hep-c-treatment/#comment-1838 I would really be so greatful i you could talk to my daughter, she was just diagnosed with geno type1. I am truley scared for her, she is just 33 and has a baby of22 months old with a face of an angel. supposed to start treatments next week. I would really be so greatful i you could talk to my daughter, she was just diagnosed with geno type1. I am truley scared for her, she is just 33 and has a baby of22 months old with a face of an angel. supposed to start treatments next week.

]]> By: susan http://www.susanpiver.com/wordpress/2008/03/19/hep-c-treatment/#comment-1719 susan Tue, 17 Mar 2009 13:17:20 +0000 http://www.susanpiver.com/wordpress/2008/03/19/hep-c-treatment/#comment-1719 Sharon, so glad you're virus free! And so sorry to hear that the "brain fog" is still with you. I would say that mine is about 80% gone. I would also love to hear from others about side effects that have lingered. (I still have hearing loss in both ears from the treatment.) I think you should definitely contact your doctor and also maybe check out sites like drweil.com or drhyman.com for articles and suggestions of natural supplements that promote brain function. I highly recommend both of these doctors. Will send all good wishes for success in your new job...Hang in there... Love, Susan Sharon, so glad you’re virus free! And so sorry to hear that the “brain fog” is still with you. I would say that mine is about 80% gone. I would also love to hear from others about side effects that have lingered. (I still have hearing loss in both ears from the treatment.) I think you should definitely contact your doctor and also maybe check out sites like drweil.com or drhyman.com for articles and suggestions of natural supplements that promote brain function. I highly recommend both of these doctors.

Will send all good wishes for success in your new job…Hang in there…

Love, Susan

]]> By: Sharon Griffith http://www.susanpiver.com/wordpress/2008/03/19/hep-c-treatment/#comment-1717 Sharon Griffith Tue, 17 Mar 2009 02:34:07 +0000 http://www.susanpiver.com/wordpress/2008/03/19/hep-c-treatment/#comment-1717 This is a great website. I too was treated for Hep C. I am Geno 1, Stage 2. I started my treatment in March 2006 and finished 2/07. I had all the usual symptoms and expected them but not how severe they were. I am still virus free, but that too has come with a price. I could not work for a year afterwards because my brain just did not work. My memory was gone. I thought I needed to train my brain again. Well I went back to work last March 2008 and lasted 3 mos before being let go. I have always had a very responsible high position making 70,000+. I started the search again and now am working in a great position but for $38,500 and I am still struggling with the memory process. I just got a grade from a 3 day cram course in something I do every day and failed the 2 1/2 hour essay. I still struggle with short term memory. I am worried that this is permanent. I guess I should contact my doctor to see what she thinks. Have you had those issues and if so did they go away? I would love to have dialog with those having these issues after taking peg interferon and ribovirin. I also took the two shots for white and red cells. God Bless Sharon This is a great website. I too was treated for Hep C. I am Geno 1, Stage 2. I started my treatment in March 2006 and finished 2/07. I had all the usual symptoms and expected them but not how severe they were. I am still virus free, but that too has come with a price. I could not work for a year afterwards because my brain just did not work. My memory was gone. I thought I needed to train my brain again. Well I went back to work last March 2008 and lasted 3 mos before being let go. I have always had a very responsible high position making 70,000+. I started the search again and now am working in a great position but for $38,500 and I am still struggling with the memory process. I just got a grade from a 3 day cram course in something I do every day and failed the 2 1/2 hour essay. I still struggle with short term memory. I am worried that this is permanent. I guess I should contact my doctor to see what she thinks. Have you had those issues and if so did they go away? I would love to have dialog with those having these issues after taking peg interferon and ribovirin. I also took the two shots for white and red cells. God Bless Sharon

]]> By: susan http://www.susanpiver.com/wordpress/2008/03/19/hep-c-treatment/#comment-1689 susan Tue, 03 Mar 2009 13:16:47 +0000 http://www.susanpiver.com/wordpress/2008/03/19/hep-c-treatment/#comment-1689 Crystal, how are you?! How's the treatment going? I don't have any words of wisdom except to say give it a try. You can always stop... I found the side effects to be very difficult but also totally manageable. I was able to live my life as I wanted. I hope the same is so for you. Wishing you all best!! Crystal, how are you?! How’s the treatment going? I don’t have any words of wisdom except to say give it a try. You can always stop…

I found the side effects to be very difficult but also totally manageable. I was able to live my life as I wanted. I hope the same is so for you.

Wishing you all best!!

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